Cystic Fibrosis, Transplant and Me (GP)
I was diagnosed with Cystic Fibrosis when I was just 3 weeks old. I was diagnosed with Pseudomonas when I was just two, this was the start of endless treatments and IV antibiotics. It was also the time that I refused to eat and needed to have a tube put down my nose to feed me. This was my life for many many years (the tube was changed and I had a permanent one placed in my stomach when I was 5). I didn't know anything different other than taking tablets, doing physio and having IVs every 8-12 weeks. It was my normal. I stayed pretty stable for quite a few years. My Lung Function sat around 40%. It was low but I carried on living. It wasn't until I was 16 when my lung collapsed that everything changed. In April 2010 my left lung collapsed, I stayed in hospital for 3 weeks with a chest drain in. The day I was discharged (I got all the way home from London) my lung collapsed again. This time I had to have surgery to try and stop it from going again. By the time I was dis...