Life With Cystic Fibrosis - In Memory of Danielle Jones
This post was originally written in 2016 by Danielle Jones who passed away November 2017. Life with Cystic Fibrosis. It has its good and bad times. I was diagnosed with CF at 9 weeks old. I was pretty much in hospital for that whole 9 weeks due to being so poorly. As the years went on I was still very healthy, lung function would be about 80% or over, my weight would be brilliant, the only time I ever stayed in hospital was for my 2 weeks of IVs as mum wasn't trained enough at that time! I only ever needed IVs like 3 times a year so that was nothing. In 2010 I needed a port fitted due to my veins being rubbish, that was the best thing I ever did! Life carries on being very good and healthy I then had my wish, I went to London for a few nights to see high school musical live! Also Madame Tussaud's and sea life center, it was brilliant and I had a lovely time! I used to always go abroad a lot too, like every year to different places so if ever ...