Cystic Fibrosis Month

It's May!

For some people, May is a big month. Whether that is because of Star Wars (May the Fourth be with you) or maybe the iconic, "it's gonna be me/May." For me, May is Cystic Fibrosis month.

This month I will be posting a blog post about CF (almost) every day in May. I won't be posting on weekends or the bank holidays. I also won't have a post going up on the 24th because I'll be in Cardiff all day for a concert later on in the day!

I have a couple of people doing some guest posts this month, there's one from a CFer about coping with school, there's one from my best friend about being friends with a CFer, and there are two posts this month which have both been previously posted on this blog and both of the people that wrote the blog posts have since passed away so those posts are going up in memory of them.

I hope you guys stick around this month to find out more about CF.

If you have any questions please comment them down below or tweet me (@sjamesphotog) and I will get back to you as soon as I can.

Shannon x

Comments

Post a Comment

Popular posts from this blog

Film Review: Last Call + Q&A 2023

The Cinema In The Power Station, London 5 stars Director: Harry Holland UK rating:  Length: 19 minutes Cast: Lindsay Duncan, Tom Holland This review contains mentions of poor mental health and suicide. SPOILERS AHEAD FOR LAST CALL When I saw Harry Holland’s Instagram story advertising a screening and Q&A of his latest short that was happening on the first day of my London birthday trip I knew I had to be there. Holland is probably most well known for being Tom Holland’s younger brother but I think in the future this is sure to change as he starts to be recognised for his own artistry.  Last Call isn’t Holland’s first short but it’s bound to be the one that people talk about for years to come. At 19 minutes long it is a stunning piece of work. Certainly a film to be proud of. Last Call tells the story of Kate (Lindsay Duncan) and her son, Charlie (Tom Holland). Kate goes to meet up with Charlie, seemingly for the first time in a while and the tension is high. They converse and it’s
Read more

What Not To Say To Someone With Cystic Fibrosis

"But you don't look sick!"                     Thanks for the compliment? "Maybe you did something that triggered the illness."                     Sure. Thanks. I feel great now. "I know exactly how you feel."                     I'm pretty sure you don't since you don't have a chronic illness. "My friends, mothers, cousins, daughter died of CF."                     Wow. Thanks for telling me. I really appreciate that. "It could be worse! You could have cancer!"                     Listen, all illnesses are bad, it's not a competition so PLEASE don't say things like this! "Just think happy thoughts!"                     Oh, thanks. I'll definitely try that. I'm sure it'll get rid of my incurable disease. "You're so brave. I could never do it!"                     I kinda have to otherwise I'd probably die. "Try this obscure 'cure' I found, it cur
Read more

What it's Like Being a Friend to Someone with CF (GP)

Image
How & When We Met: I met Shannon in comprehensive school, we were in the same form class, so met in year 7. We didn't really interact until year 8, this is when we started becoming friends, I questioned why sometimes she was in the little meeting room in form and why she got to stay inside some days and she explained that she had cf. Of course, I'd never heard of this so when I got home that day I did a little research on what that was. Becoming Friends: We started off as mutual friends with Amy, I'd known Amy from primary then Shannon and Amy became friendly and of course, we became friends too. We had sleepovers and went out. As me and Shannon became closer Amy became more distant. We were all still friendly with each other and still are. Shannon and I seemed to share more interests. My Understanding of CF: To my understanding, CF is a genetic disease that 1 in 25 people are carriers of and don't even know it. It is described as an "invisible illn
Read more